The vulva - vulval cancer and lymph nodes in the groin - Macmillan Cancer SupportTogether we will overcome cancer More...More...More... Diagnosed today - Vulvar Squamous Cell CarcincomaRegister to postLog in for post32 posts since8 Jan 2013 Hello everyone, today I retracted from an unexpected diagnosis (well I expected it wasn't) by Vulvar Squamous Cell Carcincoma Stage 1B. I am numb at the moment (the wine is helping :0) and I am trying to prepare myself for the road ahead. I'm 40 years old, married to 3 children 21, 16 and 7 years old, and although I'm trying to be positive, I can't help thinking that the way ahead is going to be rocky. I'm seeing a Girón Onc tomorrow and I understand that more tests and surgery will follow. I presented what was suspected as HPV injuries and surgically removed 5 weeks ago. The histology of the biposis received today shows good margin around the area by removing the austro my ginos tips is to remove a wider area. You can't confirm that it hasn't spread beyond. The advice is to have additional surgery to remove a wider area and to check lymp's nodes. I'm very surprised by the little information or support available for this type of cancer, so I'd love to hear from anyone who's been on my boat. Of course I would love to offer support to anyone who is going through any kind of cancer, I am a bit crippled but I am determined to do what I have to overcome this, educate people, especially my daughters (and son!) and I really think knowledge is power and with the right positive support that we can all learn, support each other, educate others and achieve something regardless of our long-term prognosis. My mind right now is a lot to tell my old mom, family and friends and decided to wait until after my appointment tomorrow before making this decision. This is a tough one, any advice? Thank you for reading 20 posts since28 Nov 2012 Hello Shazza... I'm pretty new here. I'm sorry I heard about the diagnosis. I'm not familiar with your own situation, but I'm sure someone here will be able to provide you with some specific advice and information. It's a moment of safe concern. Telling the family is difficult but I reassured my daughter for being positive and explaining that cancer treatment is much better than years ago. Everyone gets in shock and panic. It's normal. I told my daughter she can ask me something. It doesn't matter if you think it's a dumb question or if you think it's gonna bother me. So he knows everything he wants to know. She's 15 years old and she's an uncomfortable age almost an adult, but still my baby! I'm still crying when I need to be no super woman. And my daughter is very open about her feelings. Sometimes I get so wrapped up in my stuff that I forget that she cares too. Tell your mother it'll never be easy. If she knows you're getting your head around and getting support from everyone then I think that might help. Good luck. He'll be thinking about you tomorrow. Sharon xxx1 posts since9 Jan 2013Holy to Jesu! My cancers are like teh horns! I got it in my ****, penis, balls (that's *****) ****, balls, penis,****, balls of arseholing and when I sin, its like horns chopping my balls agoneeee! Mozart32 posts since8 Jan 2013 Hello Sharon Thank you so much for your response and advice. Night without sleep as expected I suppose and very nervous about what the next hours have. I will keep in touch with family and friends until I know more about my situation and treatment plan. It is reassuring that people like you are here and are willing to chat and offer advice and share your own experiences. Thank you. How long have you been dealing with your situation? Thank you for your kind thoughts and provide updates later today I expect xx32 publications since8 Jan 2013Hi TodoGood today was quite difficult to say the least... I had my date with the Gin and the result is they suspect there's still a carcincoma. The action plan is to remove a wider area, perform a skin graft to maintain functionality and try to keep things looking pretty low ...4 weeks later they will remove all lymph nodes in the English area. In the octopus of the nodes it doesn't seem that anything out of the ordinary can be felt... I guess this doesn't mean it hasn't spread, but I hope it's a good sign? The removal of the nodes is being treated as a precaution, rather I'm sure I'm sorry....Nodes will be biopsied in the elimination and subsequent treatment will certainly be based on this result. It is likely that you will also receive radiation treatment after surgery and the area has healed enough for this to be done. The logic with this is that radiation damages the skin and, therefore, if radiation alone was first made and is not sucsesive surgery then would be more complicated and problematic. A concern you have is the close to my rectum this area and I can only wait and pray that it has not spread there too.. Could someone share with me their lymph node removal experiences in the English area, as well as radiation treatments and what to expect? The other thing I'd be interested in is to boost my immune system and congratulate my treatments with natural remedies and cancers fighting food / herbs, etc. Has anyone else been on this road? I'm trying to stay positive but I feel emotional, mental and physically exhausted already!! It was hard to see my husband break down and sob today. We have decided not to mention the word C to the children, the surgeon felt that this conversation is a bit premature as it is hopeful that we can deal with this. Thank you for listening to xxx4177 posts since11 Oct 2010 Hello Shazza40,Thank you for updating us on how it was today. I'm sorry to hear that it was difficult; it seems that you have a very supportive and sensitive husband and I hope that you will also find comfort in talking to others here who can really understand you. I thought you should also emphasize how important it is to inform the consultant that you are taking care of you about any supplement you are taking even if they are natural herbs or remedies as they may interfere with your treatment at times. We have information about alternative and complementary medicines on our website in this . Very best wishes,Lucie, Cancer Chat Moderator32 posts since8 Jan 2013 Hello Lucie Thank you so much for your kind words, my husband is an amazing person and I am so lucky to have him in my life. It's hard to see someone you love hurting and I'll also be there for him, he's both part of the process and I and so often forget how our partners are feeling and facing? As for alternative treatments, I fully agree that it has to be done in conjunction with your medical team, I only take a daily Vit C (1000mg) and multi-vitamin (that my preoperative nurse is aware) and my thoughts on this was more to fight cancer food groups to include in my diet. I have read that certain foods retract while having treatments (pain, broccoli, etc.) and some are not (white panes, sugars, etc.). I'll definitely look at the link you've included, I guess I just want to put my boxing gloves on and try to help myself too. Thanks again. Lucie, it is highly appreciated that people take the time to read and respond to messages, even if only to greet. It is good to know that there is a support system in the form of this forum. RegardsShazza798 posts since23 Dec 2012 The great embrace of me Shazza will be thinking about you and observing your progress. Annabel.32 posts since8 Jan 2013 Thank you Annabel, and for you 20 posts since28 Nov 2012 Hello again. I just got in before I went to bed to see how things went. Oh, it looks like you've had a lot to spin your head. Your husband sounds like a very nice guy. And I think you've been given reasonable advice on the news of the children. You'll find the right time soon enough. You were asking about the treatment of radiation therapy but to be honest with everyone I've talked to have different experiences so don't listen to all the horror stories. I have rectal cancer. In my third week of 6 at this time a chemo and radiation therapy. I'm doing a clinical trial with a cream called Gutlife. I know what a beautiful name. There's another woman and I use it. It is later with its radiation therapy and so far its skin has remained quite healthy. Apparently it prevents skin cells from breaking down. So I hope I have the good results you're having. Radiation therapy is very fast and painless. Closer to the end if some people experience symptoms of something along the sunburn lines. So becoz I'm getting the old nether regions treated a little delicate down there, they gave me this cream to try. My diet is the opposite of yours so I can't advise you on it. I have to make myself clear if the high frutilla fiber, etc. the only time in my life they tell me that you don't eat healthy and all I'm driving to eat is ja ja ja ja ja ja ja ja ja ja ja ja ja ja ja ja ja ja ja ha sends you a lot of luv and hugs... Take care, Huni. Sharon. xoxo32 posts since8 Jan 2013Hi Sharon63 Thanks for the information, I think I can be my own worst enemy in trying to get too much... I am learning to take information through the Internet with a pinch of hard salt as it is...I guess that every experience is individual and just having some knowledge of what to expect is better than not knowing at all, especially if you are a "dust" like me. I hope you succeed with your treatment, you sound so positive and a sense of humor to boot! Please let me know how you're going up, it's just a relief to be able to chat with people who go through something similar. I'm trying to keep myself light as I know my diagnosis so far could be much worse and that's why I'm really grateful. The things our pieces have to happen! I can do Jelly Lol... I could even consider adding a retrete of Vodka lol... My husband is wonderful and blesses him, he is trying to be strong, but unfortunately we all have our limits and in a way I am glad that he crumbled today, as this is a way for our minds and bodies to release stress as hard as it was to see, I think it felt better afterwards. He felt very positive with the team that we met that will do the surgery and provide support for it to be also comforting. We try to be as open as possible with our children, but the surgeon seemed very positive in terms of achieving a good outcome and thinks we should wait as this can be so distressing for especially adolescent children. He said it depends on us as to whether we want to tell them, Hubby and I have decided that until they tell me otherwise we have to be positive that my treatment result is good and if we can avoid pain and uncertainty for now, especially as my elder is in his last 6 months of Uni and doing tests and my other daughter is doing GCSE, (it's already stressful time for both) so I guess they have enough support. Thanks again for writing and chat soon, xxx32 posts since8 Jan 2013 Hello Feeding the Ventilation...... feeling very stressed, worried, today down, I think the reality of everything is hitting home, starting to think all kinds of things and wondering if this pain or that itching or that the itching is something to worry about. Do you feel very stressed by my surgeries, mainly by the removal of the lymph nodes, this seems such a drastic surgery? I wonder now if it is a secondary cancer or a primary area, my smear has not yet been made (about 10 months because of treating this problem) worrying about that now, as I wonder if there is a link between cervix cancers and vulvar cancers, do I have any of these chances of having the other? Having read some personal stories on the net (big some of them have jumped many years ago and have been desperate? I have left a message for my nurse to call me while I need to ask all these questions, so I hope it sounds late instead of late... what day it's going to be! 9 posts since11 Jan 2013 Hello Shazza I haven't been in this place before, but I have followed it for the last 18 months when as you diagnosed me with stage 1 cancer of the vulva, seeing your message I had to register to try to reassure you, knowing exactly how it feels right now. When I was diagnosed I had a MRI scan and then I referred to a gynae surgeon who operated three weeks later, I had a partial vulvectomy with the removal of all my lymph nodes on both sides of my groin, were sent for a biopsy and for my relief they all became clear though my surgeon told me after my surgery that he did not see any signs of cancer when he took them off that reassured me. Op was pretty straight forward with 4 days at the hosp, but he was out of work for about 10 weeks, the healing process takes quite some time, uncomfortable at first but not too bad, the removal of lymph nodes I found was the most uncomfortable where the fluid took a time to drain, the best part was knowing that there was no cancer so anything else was easy to put, I was revised at the hospital every 3 months during the first year Take care of 32 posts since8 Jan 2013Hi Poppy Thank you for your response. I'm glad to hear that things are good for you and remain free from this terrible illness. I'm having very high and low days, as you're right to say there's little information out there, I feel like I've been diagnosed and this is the plan, which is big to some degree to have a plan, but now I'm having all the doubts and concerns about what's going to be ahead. I know in my common sense mode that removing the nodes is a sensitive approach but I cannot help but think that if they are clear I will still (possibly) have to live with things like lymphedema. Have you told me Lymphedema doesn't affect everyone? But I guess I'm not optimistic at the time of escaping that... I've been in contact with a number of women who have been through the above (and diagnosed in different stages) and it's positive and therapeutic to know that they're so far free from this disease to date so that that's been a great help to me. I am grateful for being diagnosed (so I can be) at an early stage and I am trying to make this my center of optimism. Thanks for taking the time to chat with me, it's very appreciated. How remarkable is your lymphedema? Is this something you have to deal with every day that there are tiggers? Did my nurse say the extract plays an active role in managing this? I have a right to 5 months of sickness (with payment) and 5 months to 1/2 payment, so I need to try to get back to the swing of things as quickly as possible. I feel a lot in my work (based on computer) so I wonder if this will help me develop lymphedema? I also read that swimming (due to chlorine) can trigger this? Swimming and I suppose it would be a preferred way of excerting, as it is soft in the body. many things to consider... Thanks again. Poppy and I hope to chat some more x9 posts since11 Jan 2013 Hi Shazza I remember feeling the same as you in the diagnosis and even the operation itself, I stayed strong for my family as much as I could, everything seemed a bit surreal and I didn't allow myself to think about it too much and I continued with my life as normal, well, as much as I could. Not having to wait too long for things to move also helped, so it all happened in a short space of time. I didn't understand the consequences that my lymph nodes would be eliminated only that they would stop any cancer spread anywhere else, which of course is the only thing that interests me in time, your information you've received is correct, not all develop this and don't have to develop directly, walking is good and although you have a job sitting as long as you can get up and walk on it will call me the least you said you had a good 5 months. I hope this helps you and things move quickly for you. 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Warning: The NCBI website requires JavaScript to operate. Big Vulvar Lipoma in a Adolescent: A Case ReportJung Hoon LeeDepartment of Plastic and Reconstruction Surgery, Kosin College of Medicine University, Busan, Korea. Seung Moon ChungDepartment of Plastic and Reconstruction Surgery, Kosin University College of Medicine, Busan, Korea.AbstractLypomas are the most common benign tumors of soft tissues. However, conventional lipomas have only rarely been reported as presented in the vulva. We present a case of vulvar lipoma in a 17-year-old woman, possibly caused by chronic intermittent irritation. INTRODUCTIONThe benign tumors of the vulva are usually classified according to their origin as epithelial tumors of cells (e.g., keratinocytic, annexal, and ectophos), or mesenchymal cell tumors (e.g., vascular, fibrous, muscle, neuronal, adipose, and melancholytic) (). Although lipomas are the most common benign tumors in soft tissues derived from mesenchymal cells, for vulva they are so rare that there are very few reports. Here we document a case of such a rare vulvar lipoma in a teenager with a literature review. CASE REPORTA A 17-year-old woman, a Tae Kwon Do practitioner, presented to our hospital complaining of a soft, movable mass in the right labia majora (). He reported that he caused discomfort when he exercised. The mass had gradually grown more than a year. There was no family history or abnormality in laboratory tests that could serve as a good reference. Using ultrasonography and computed tomography (CT), an encapsulated fat mass was detected on the right main lips. Tumorectomy was performed under general anesthesia. The incision was made along the lateral margin of the mucosa in the right vulva longitudinally in order to hide the scar from being visible. Mass including 1 cm wide leather strap in the side area of the incision line was carefully removed. There was no difficulty in surgery because the dough was well encapsulated. After the removal, a Barovac® evacuator (closed suction drainage system) was applied and a safe suture was followed with a compressive deposit. The excise specimen measured 8.2 × 5.5 × 3.8 cm and was surrounded by a fibrous capsule. The histologic sections in series showed lab and homogeneous mature adipose tissue (), and histopathological diagnosis was of a lipoma. Mass on the right lips. Computed tomography at the level of external genitals reveals a lipomatous mass (fleight). The tumor consisted of mature adipocytes (*). Hematoxylin and Eosin stain, ×200. DISCUSSION The most common areas for lipomas, the most common benign tumor in soft tissues, are the upper part of the back, neck, shoulder and abdomen. Lipomas have been identified in all age groups, but usually appear first between 40 and 60 years. While the solitaire lipomas are more common in women, the presence of multiple lipomas (lipomatosis) is more common in men. The variants seen include spindle cell lipomas, pleomorphic lipomas, angiolipomas and adenolipomas. There are very few reports on conventional lipomas in vulva (). In 1969, De Lima Filho et al. () reported a case of a 35-year-old woman. In 1982, Fukamizu and others () reported a case of a large vulvar lipoma pedunculate in a baby, who had been present since birth. In 1999, Van Glabeke et al. () reported a case of neonate with a vulvar lipoma observed in the preputium clitoris. Kehagias et al. () described the findings of TC for a large vulvar lipoma of 17 × 13 × 7 cm in a 35-year-old woman and concluded that the ultrasound, TC and magnetic resonance imaging (MRI) were useful tools to reveal the lipomatous consistency of these tumors and to differentiate them from vulvar cysts. Agarwal et al. ' s most recent report in 2004 () describes a 35-year-old woman with a lipid derived from her left lips. Table 1Case of conventional vulvar lipomas reported in literature Most of the reported cases of vulvar lipomas involved adults were tumors that had presented since their birth. However, our case was a conventional lipoma in the vulva of a 17-year-old Tae Kwon Do practitioner. Although lipomas are both clinically and pathologically known fatty tumors, their precise etiology is unknown. However, one of the most involved etiological factors is trauma (). Copcu () reported that chronic minor traumas could trigger the formation and expansion of lipomas, and described two cases of scapular lipomas induced by sport in a volleyball player and a ping pong player. Our patient mentioned discomforts to kick due to the vulva mass. This can be considered to show the relationship between the formation or expansion of lipomas and chronic irritation caused by activities such as kicking. We speculate that lipoma in this patient came from chronic intermittent irritation of soft tissue in the vulva caused by the kick. Vulvar lipomas have to differentiate themselves from liposarcomas, which develop rarely but are very similar to lipomas clinically (). TC and MR have recently been used with some success to differentiate the two (). To exclude the possibility of malignant tumors, the biopsy must be performed by surgical excision. To our knowledge, this is the first case of a conventional vulvar lipoma reported in a teenager. ReferencesFormats: Share , 8600 Rockville Pike, Bethesda MD, 20894 USA
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